Artigo

Navigating the Multidimensional Impact of Living with Hidradenitis Suppurativa: An In-Depth Netnographic Study on Social Media Platforms

André Vicente Esteves de Carvalho

Original Research, v. 13, n. 0, p. 2797-2815, 2023.

Motivo: Produção Corpo Clínico

Setor HMV: Clínica Médica

Área da saúde: Dermatologia

Resumo: ABSTRACT Introduction: Hidradenitis suppurativa (HS) is a chronic skin condition causing considerable distress. It impacts mobility, social interaction, and quality of life. In Brazil, there is a notable gap in epidemiological data and patient experiences regarding HS. Methods: This study, spanning 2019 to 2022, employed netnography to probe the experiences of Brazilian patients with HS. This approach gleans insights from online interactions, offering a direct view into patients’ lives. Results: Notably, the data illuminated the challenges patients face, such as difficulties in obtaining a diagnosis and the complexities involved in managing a chronic, and often debilitating, condition. Furthermore, patients’ experiences with various treatments, encom- passing antibiotics, biologic agents, lifestylealterations, surgical procedures, and alternative remedies, were also examined. Conclusion: By undertaking a longitudinal analysis of patient interactions, the study aimed to offer a richer understanding of HS, from its diagnosis to its treatment. It underscores the

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